One is never as unique as the day they figure they're not! Monkeys and sheep and cows and dolphins all need to belong to an order. The world rewards us for our compliance then turns around and punishes us and "boxes" us into this retirement of a sorts! I REFUSE TO BE BOXED IN!
I am unique, but only about as far as I share genetic alleles with 2000 others(only 2000!)and some plant life and animals. I have more in common with the so called "lesser" species of living things that inhabit this world and it suits me just fine. This place has been molded and perverted by humans for far too long and I have noticed the numbers of MY kind growing though it would give chills to the ignorant to realize this as fact.
I have a rare and old genetic disease, a mutation. Like I am the proof of existence that the "X-men" are real! And seeing as it is Halloween and the autumnal equinox-al time of year, I feel it is about time to "out" myself to the rest of the sheep and monkeys in the damn zoo!
Many people fantasize and speculate about my existence and have hunted and killed my kind for thousands of centuries! I have been here the whole time and despite my ancestors being treated like dogs and monsters we are a proud lot. This is the first part of my story and of my kind.
Porphyria is a real disease. It is also a crippling one to live with. People aren't aware that there are several forms and that most forms of this disease are caused either chemically or environmentally, the latter being self imposed by choice of lifestyle and having no chemical or genetic cause. The known seven types are all different, the only likeness between the seven is the hypersensitivity to the sun. My porphyria is the one that has two known causes. Don't get me wrong, all seven branch off into sub-categories but one, mine, has genetic linkage. The kind that makes moms snatch their children close and men aroused at the knowledge of!
I suffer from Erythropoietic Protoporphyria(it's a mouthful)and mine is genetic. There is no cure. There never will be. There's nothing wrong with me 'cepting the fact that I am a duck out of water! It isn't enough to be linked genetically to two of the most notorious generals that ever walked our rock: Napoleon and Geronimo...but to also have the blood of the most fierce general, lord, known to mankind. The king of monsters!(so you all believe)
I am the great great great great....grand daughter/niece/cousin of Vladimir Dracul. It is true, yes, and was a hard pill for my family to swallow I might add. They weren't any more believing than you! hahahaha... And now they approach me with the same reservation as all of you will assuredly do! EPP, as it is called in short, is a debilitating sentence to which we are not as immortal as one would have you think! We only LOOK immortal because we age better than you. I am 38(9 soon) and resemble the youth of an early 20 something. I am however past my prime and by all reasoning known to medical science, should be dead-8+ years ago! There are no records of anyone living past the age of 30 with this disease without the modern aide of medicine and doctoral interference, yet I have done so and proudly, in the footsteps of my grandpa!
It does explain a lot after all these years. I war with everyone and am protective of even those I abhor. I have had this burning disdain for all things human for some time now and am for the first time, comfortable in my own skin! I am a creature of the night, a peaceful creature until challenged and done harm! And it would interest you all to know that it is not just sunlight that makes me ill and shortens my life, artificial lights do too. Not all of them but a good portion and with the recent invent of LEDs, they are still testing the ramifications of the exposure. I live in darkness and to me the world is black and white. I see some color, occasionally, and am jealous of what you take for granted. I am educated, talented in all the arts of man and have excelled in all I have ever wished to accomplish. Had money and had not and had love and had not! I have been a warring little bitch and never lost a fight and won't ever lose an argument except with grace. There is more to tell, but this is a blog so I will leave you with this for now:
MY CALL~
I am an individual, a person you can see,
if only to open your eyes a bit you'll see it's plainly me.
I may wear clothes and shoes alike and speak your language true,
but never in my wildest dreams have wish to be like you!
I am a learned creature full of thought and hopes and wants
and keep real close to kin alike despite what teased and taunts.
For I am something special to be adorned, admired and loved
as you are too, my friends and foes. We don't all fit the "glove".
The hand that molded me was calm and graceful in its stead.
But why do you be so afraid and accuse me for the dead?
My heart beats true and faster than you when my will is challenged, they say.
My ancestors cry out in agony for we are the WAMPHYRI!!!
peace be to all creatures big and small, weak and mighty, loved and loathed~mobe's love to you all and her all to her loves! TBC(to be continued.....)
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